Originally Posted by trompe le monde
what Livestrong really does and what value it provides -
I cannot speak for Livestrong.
It was not an option for us because of where and when cancer struck.
But I can speak for the need.
When cancer struck my close family, you discover that beyond the pure medical assessments there is a vaccuum of someone to discuss with, advise on a myriad of related issue on how to live and cope with the disease. Sometimes just someone to listen who knows cancer but is outside your problem is enough.
But the medical establishment is like a conveyor. Nobody really discusses or has time to discuss the broader issues with you, or whether the medical opinion you are given (railroaded in most cases) is the only option or the best option. You have a total feeling of being alone. It takes you in and spits you out with the next instruction on when to come next time.
If you read many still supporters of Livestrong it is clear that that fundamentally is what Livestrong did for them. It was there at the end of a telephone to answer teh 1000 questions on the periphery, and in many cases just listen. That is sorely needed. We would have loved to have had such a resource when cancer struck in our family - just to feel less alone is enough with someone who understands the disease and gives hope and advice.
Of course - I cannot speak for how well they deliver that as a service, or whether the output justifies the cost, but it is wrong to assume that it needs to be involved in (say) medical research to be of any value. Just helping you feel less alone - helping you feel you are part of an army fighting the dreadful disease -putting you in touch with people who have already won the battle you are trying to win - and being a source of advice on options and how to live with the disease is enough to be well worthwhile for cancer sufferers.