Recent content by Clarky07920

Had my muscle biopsy today so i'll post back when I get the results. not expecting it to reveal much but hopefully rules some stuff out!

I think your probably right... I have given up looking for a cure/solution other than to reduce the level of training I do. Cycling was pretty much my life but it has helped me to prioritise a few things like family and work. Ironically I actually feel like I have a better balance now - I still...

Hi Shayne. I watched that video and of the 3/4 symptoms mentioned I have only had the severe cramps. I've never had the second wind, fatigue when exercising or the red urine (the other symptoms). You mentioned you didn't have second wind. What about red urine (rhabdomyolysis?)? How did you get...

The one bit I'm not sure about in relation to mcardles' is the second wind bit. I don't think this has ever happened with me and I have never struggled to perform any exercise because of the condition. The pain has only ever happened outside of exercise, but when walking down hill or down stairs...

I was diagnosed with metabolic myopathy and mcardles does eeem to fit with my symptoms. I have reluctantly ruled out training and racing although I have been doing one ride a week. The number of 1 in 280,000 in the U.K. Seems low, but I reckon they could be right that many remain undiagnosed as...

Just had EMG - all normal as suspected

Will be interesting to know whether there is actually something they can do about it once they do get to the bottom of what it is!! As part of my extensive blood testing I was also just (last week) diagnosed with alpha one antitrypsin so the metabolic myopathy has taken a bit of a back seat...

Hi Shayne So did they conclude it was a case of metabolic myopathy, and if they did was there any suggestion about how to manage it effectively? My consultant was pretty confident my issue was metabolic myopathy (I've got EMG tomorrow and biopsy in march) and he just said I had to cycle less...

That sounds like a form of metabolic myopathy to me Shayne so I'd not be surprised if this was the culprit. I'm back I the NHS now so not sure when I'll next see consultant neurologist but I'll mention it. My MRI came back clear yesterday. I suspect it is this is what I (and possibly some...

http://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Metabolic-Myopathies

I hadn't even seen this post when I saw him but I'll definitely mention it. He said that there were other specialist at addenbrooks that he may also rope in, because it is quite a rare condition. I suspect more people may have if It but never suffer as they don't train (or do anything). I...

Hi Shane! TBH they are not sure whether my immune condition is related - I'm just lucky I guess! I only had the metabolic myopathy diagnosis last week and the neurologist has suggested I revert to NHS for the biopsy and EMG and I am awaiting dates for both. The neurologist was Dr Peter Martin...

On a quick note. Have any others on here got any immune system issues as well? I also have hyperthyroidism caused by Graves' disease. It was diagnosed 2 years ago and there can be a link between immune disorders and metabolic myopathy and rhabdomyolysis. Graves is diagnosed by thyroid level test...

Hi all, I have all the same symptons bought on by the same activity/rest after a decent amount of training. I tend to cycle around 12 hours a week and chuck in a couple of gym sessions if I can. I have had these symptons on and off for about 4 years, but they have always been manageable and I...