Recent content by pasaglia

I have had this issue since I was 25 (I am now 44). Two years ago I started taking allopurinol (200 mg/ day) for gout and have not had any debilitating rhabdo since. I'm convinced this is the reason. It took a few months, but eventually all rhabdo stopped. There is some evidence here...

Does anyone here have gout? I have had a full genetic workup to try an solve my rhabdo issue, including a biopsy of my quad and an analysis of mitochondrial electron transport. Everything has been negative for known defects. But, I do have gout and started taking allopurinol a year ago...

Sharing the results of two rounds of genetic testing for other's reference. On Mick McGill's advice above (@mickmgill) I requested a test of the PHKA1 gene, which was negative. I see now he has been banned, so perhaps that was a poor decision! In any case I list the genes I have been tested for...

Hi - I'm so sorry for the late response. I need to change my notification settings. I've gone to the hospital a few times - at first because I was hoping for a resolution, then more recently simply to check my CK levels. I've also seen a number of specialists here in NYC to no avail. Now I just...

Hi Penny. I’ve ‘given up’ cycling regularly for years. Most of the pain is gone after a month or so, but minor episodes continue for a few months. I then inevitably come back to it - am doing this now - and end up in the hospital at some point, quit again, then come back to it a year or so...

I suspect what you are experiencing may be distinct from what others are describing. Stretching is offered perennially on this discussion board as a possible method to mitigate symptoms, though for most of us it does not really have an effect. I think many of us have tried extensive stretching...

Hi all - does anyone have any short term pain relief suggestions? Preferably chemical in nature? I do not. Separately, for those of you waiting on the results of my biopsy, I apologize as I had to cancel this due to some insurance issues - the surgeon was not covered by my plan. I’ll reschedule...

I absolutely will. Very sorry for the late reply. I'll have the biopsy in October so I suspect I'll have the results late October/ early November. WiIl post as soon as I have them.

Hi budegan. Very sorry for the late reply. I haven't logged in in a while. I think it is certainly rhabdo (the breakdown of skeletal muscle) as confirmed with a CK test too many times. I think that is the pain we are all suffering with. But the rhabdo is just a symptom of an underlying...

White male, 39 y/o. First post here in 4 years. I gave up cycling last year because my frequent travel schedule made it impossible to avoid episodes, which have increased in intensity and frequency with age. I switched to running. Training for a marathon at present (30 miles/ week) and...

I've had this for 10 years. Finally went to the ER after a particularly painful week. Spent 24 hours in the hospital on an IV. Sorry to say it is recurrent rhabdomyolysis. Could be dangerous if not properly managed - treatment being hydration. The pain is caused by the muscle breaking down and...