Recent content by RhabdomyolysisMaster

Hey fellow sufferers, I have got an update from my case. I recently saw a human geneticist, who my doctor recommended to see, and showed him my genetic report. He looked at the report and my case and registered me as a participant for the MitoNet, they will now look at my DNA or mtDNA or both in...

Hey, did you ever go to the hospital during one of your episodes (you did not mention it so I am curious), because if not I would highly recommend it, otherwise your kidneys could really suffer from this episodes. Even though I have not read a report in here, where someone got any kidney damage...

Due to fact that there are no prior cases they cannot be a 100% sure, but I had CK-Values up to 28.000 and the doctors said, that they could not get that high without some form of gendefect. And this is the only defect gene found, thus I guess it has to be the mutation causing the issue. I can...

Finally a diagnosis: Today I have got the results of my DNA test and a Diagnosis. I have got a defect in a gene in the mitochondrial DNA, which causes, that a step in the cellular respiration may not work as it should. The exact gene is the MTND6 gene and there is one base which got substituted...

Has someone tried to combine cycling with jogging? So for example, you go jogging the one day and the next day you go cycling, then you go jogging again and so on. If yes what were the results? Was there something different, or just pain in the upper and lower legs? And for how long did you do...

I think, that does not mean, that he cannot have it. I changed 2 messages with a guy from this thread and his doctor said, when he mentioned this thread, that theoratically everybody could have a different disease. Even though all in this thread have very similar symptoms. But i do not know if...

Hey, nothing special but maybe interesting for your MH hypothesis, because i have not seen somebody mentioning MH before. When i got to the hospital for the first time(stayed for a week), the doctors came to me after 1-2 days and also told me, that they think i may have MH. But they then dropped...

Hello, a male from Germany (So sorry for mistakes. My English is not the yellow from the egg) here. I have had the same symptoms described here. My symptoms started this July, when i got a new bike and started cycling regularly. The first time i got this, my thighs started hurting so bad, that...