Extreme quadriceps starting pain after 3-4 rest days

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May 25, 2020
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Hi Penny. I’ve ‘given up’ cycling regularly for years. Most of the pain is gone after a month or so, but minor episodes continue for a few months. I then inevitably come back to it - am doing this now - and end up in the hospital at some point, quit again, then come back to it a year or so later. I think the key is to stay hydrated to mitigate kidney issues. But I’ve found no resolution for the pain. Good luck!
Just wondering....do you end up in hospital because of your quads or unrelated reasons hence an enforced rest? After the month or so of symptoms after giving up cycling, are you generally able to walk down stairs, hills etc?
 
May 25, 2020
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this is so interesting- thanks mike. I’m also a medical sufferer - a general surgeon in the uk - and thought it would be some mild metabolic thing. Will investigate your blood test, having been puzzled about this for years! So glad I found this group as a lot of my fr thought I was just being weak! Usually I can terminate it by some gentle cycling, but a few days without any cycling then running or sometimes walking make my quads go completely wrong


this is so interesting- thanks mike. I’m also a medical sufferer - a general surgeon in the uk - and thought it would most likely be some mild metabolic/glycogen thing. Will investigate your blood test, having been puzzled about this for years! So glad I found this group as a lot of my friends thought I was just being weak! Usually I can terminate it by some gentle cycling, but a few days without any cycling then running or sometimes walking make my quads go completely wrong so if I’m not near a bike that can be a big problem for a week or so. As you say the best way will be to learn triggers, and how to work around it. Will also try the 800mg of Brufen (don´t take it with high dose naproxen guys- they’re both NSAIDS) and low-carbs to see if that helps
As an update to post #254 in this forum, I have the same symptoms of recurrent rhabdomyolysis after I spend more than 2 days off my bike. I have been found to have phosphorylase kinase deficiency a rare X-linked mutation of PHKA1 gene causing reduced levels of muscle phoshorylase kinase and inability to breakdown muscle Glycogen (GSD9d). No treatment. Just exercise regularly or not at all, I just have to be careful.
I encourage you to contact Dr Dave Coman, Metabolic Physician in Brisbane Australia : reception@drdavidcoman.com.au who can arrange a Glycogen storage DNA analysis (free if you live in the states) of your saliva sent to Invitae in San Francisco.
regards
Mike
 
May 25, 2020
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So glad you have done this research on our behalf @mickmcgill68. Given that you have found a very likely metabolic reason for your problem (and most likely the rest of us sufferers in this discussion!), do you have any theories as to why it is worse after some rest days? I have chosen to go the “do nothing” route as spending several hours each day on a bike doesn’t really suit my life. I’m hoping to get away with brisk walking (eventually) and swimming as my form of exercise. I’m now day 11 post riding and struggling big time! I can’t walk anywhere with confidence and am desperately hoping the situation will improve
 
Feb 17, 2016
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How odd ... a new member who said he was an MD Anesthesiologist (and a fellow sufferer) made a truly excellent post on here late last night, and now that I've finally found the time to reply - mainly to thank them - I've found that the post has been removed and the member's profile no longer exists.

I know for a fact that I didn't imagine it as I get email notifications when someone adds to this thread so I can still see the text they posted.

It's a shame as I felt quite encouraged by what they'd written.
 
May 25, 2020
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How odd ... a new member who said he was an MD Anesthesiologist (and a fellow sufferer) made a truly excellent post on here late last night, and now that I've finally found the time to reply - mainly to thank them - I've found that the post has been removed and the member's profile no longer exists.

I know for a fact that I didn't imagine it as I get email notifications when someone adds to this thread so I can still see the text they posted.

It's a shame as I felt quite encouraged by what they'd written.
Yes! Same! Where did he go? It was a different angle and another route to possibly explore and I am a bit sad we cannot carry on a dialogue with him.

I am feeling both heartened and despondent as I am into week 5 of my own personal experiment. I stopped riding altogether and after 2 weeks, I was finally able to walk comfortably on the flat. I’m still too nervous to test out serious stairs. During this Covid lockdown, the pool is not an option and due to low back issues, I can’t run. I am desperate for some cardio exercise so have introduced a half hour fast spin on my indoor trainer every 4th day. I’ve done this twice now and there seems to be no ill effect. I really now just want to find that sweet spot - do the cycling I can get away with without causing a problem.
 
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