Hi,
My 3 year old son William Lyne was first diagnosed with Acute Myeloid Leukaemia Type M7 in Feb 2011 (aged 2 at that time). He presented with a lot of pain early on and needed a constant morphine background to help through the days. “AML” is the Adult form of the disease (as opposed to the commonest form of “ALL” in children which thanks to research has a significantly better outlook).
He was treated as an inpatient at the Royal Marsden in Sutton, England until July 2011 when we were advised his chance of relapse was only 30%.
We were always advised that a relapse within a year would not be good as it would be hard to get William back into remission again, so were always on edge during this period.
Unfortunately William relapsed over Christmas (Christmas day was the first major and clear sign of a relapse). He has since had 3 courses of strong Chemotherapy again as an inpatient at the Royal Marsden in Sutton and is due a to start a bone marrow transplant (the only known cure following a relapse) today (15/4/12) again as an inpatient at the Marsden. His current chances of survival/ mortality are 50:50. The bone marrow transplant will take an average of 6 weeks as an inpatient, then many months of worry about virus/ infections which can (and have recently been seen to be) be fatal. Though clearly having a transplant in the summer is advantageous with respect to catching a Virus.
Though I wish I could cure this horrible disease, I know this is beyond me, though I can support the people who can make a difference with financial support.
With this my brother David and I + my friend/ colleague Paul Richardson have decided to cycle around the Island of Zealand in Denmark (around 260 miles) in September this year with the hope to raise money for Leukaemia and Lymphoma Research. We plan to do the ride over 5 days.
Our charity link is:
http://www.justgiving.com/williamlyne
I hope you will support me in my quest to prevent other children getting this horrendous disease.
Regards.,
James
My 3 year old son William Lyne was first diagnosed with Acute Myeloid Leukaemia Type M7 in Feb 2011 (aged 2 at that time). He presented with a lot of pain early on and needed a constant morphine background to help through the days. “AML” is the Adult form of the disease (as opposed to the commonest form of “ALL” in children which thanks to research has a significantly better outlook).
He was treated as an inpatient at the Royal Marsden in Sutton, England until July 2011 when we were advised his chance of relapse was only 30%.
We were always advised that a relapse within a year would not be good as it would be hard to get William back into remission again, so were always on edge during this period.
Unfortunately William relapsed over Christmas (Christmas day was the first major and clear sign of a relapse). He has since had 3 courses of strong Chemotherapy again as an inpatient at the Royal Marsden in Sutton and is due a to start a bone marrow transplant (the only known cure following a relapse) today (15/4/12) again as an inpatient at the Marsden. His current chances of survival/ mortality are 50:50. The bone marrow transplant will take an average of 6 weeks as an inpatient, then many months of worry about virus/ infections which can (and have recently been seen to be) be fatal. Though clearly having a transplant in the summer is advantageous with respect to catching a Virus.
Though I wish I could cure this horrible disease, I know this is beyond me, though I can support the people who can make a difference with financial support.
With this my brother David and I + my friend/ colleague Paul Richardson have decided to cycle around the Island of Zealand in Denmark (around 260 miles) in September this year with the hope to raise money for Leukaemia and Lymphoma Research. We plan to do the ride over 5 days.
Our charity link is:
http://www.justgiving.com/williamlyne
I hope you will support me in my quest to prevent other children getting this horrendous disease.
Regards.,
James
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